Thursday 7 August 2014

Two Years Since Diagnosis

One For Sorrow. Lou Loakes
Around 100 people turned out for the opening night of Breathless Breastless Project. It was hard to believe that an idea in my head was now hanging on the walls of a council run creative hub in Aberdeen’s city centre. With a glass of bubbly in hand I chatted to the Lord Provost of the city, Lady Provost of the Shire and many other invited guests. The Press & Journal and Original FM wanted interviews. SHMU FM invited us to do a live broadcast on the culture show at the end of the week. I stepped out of my comfort zone on opening night and gave a speech to the audience as we all stood around Beate’s Living Tree Of Life, Hannah’s portrait on the wall behind us, a stark reminder of the power that this disease still has to take 1000 lives each month in the UK.

Feedback from the 350+ visitors who came to see the graphic images and learn of the journeys of breast cancer survivors was quite overwhelming. “Inspirational, powerful, beautiful, poignant, breath-taking creativity, magnificent, evoking, emotive….”

Stark reality. Jane Birrel MacKenzie
My life has changed considerably in the two years since I was diagnosed. Two years ago yesterday, I sat in a white consulting room on a blue plastic chair waiting. I remember it was sunny, I pushed my fingers through the vertical blinds to let in the sun, I watched the hands on the clock tick, I saw the box of tissues on the desk. Moments later came the news that would change my body and my life.

The hot needle stabs that occasionally pierce my chest are a reminder of the surgery and the loss of my breast. These are brought on by exercise such as swimming and the rowing machine. I have given up with the rowing but am keen to develop the swimming. On the anniversary yesterday I tried out the new Aquatics Centre in Aberdeen for the first time. Fabulous facilities and a wonderful 50m lane pool where I managed to swim 1km.

Tamoxifen side effects remain minimal and it’s hard to differentiate from what is “normal” as one gets into their 50’s! I sometimes feel as though I lose big chunks of memory, not just words or detail, but chunks of time unsure of what I did or with whom. Most mornings my eyes are very cloudy and it takes several minutes for them to clear fully. The heat has caused swollen legs and I am experiencing a low grade temperature for about half the month which the doctor says is the Tamoxifen. (He didn’t actually take my temperature or examine me in any way). Menstruation continues regularly, heavy on day one but then as “normal”. I’m getting around two to three “fatigue” days a month, the temperature doesn’t seem to help this. I just manage my time and try not to cram too much into my day or week, combining good diet and exercise, work, play and relaxation where possible.

Since the passing of two years, I have learnt who and what are important to me. I have learnt to be calmer, to expect less, to demand less, to live in the moment, to do the things that make me happy and to avoid or minimise the things that cause me stress. There is no time like the present and there is no present like time. Time is the greatest gift any of us will ever have.

Some relationships have deepened and drawn closer, some have diminished and no longer hold much value. They were what they were for a period of time only. The ones that remain are to be cherished and enjoyed and time shared filled with moments of living, giving and enjoying. My experience has enabled me to help others in similar situations, able to offer a friend some comfort following her own mastectomy and reconstruction and support to my cousin during her diagnosis and subsequent lumpectomy. And then there are new friends. New people brought into my life along the way. My Project artists, the team. People who have uplifted, inspired and believed in me. People who made my dreams possible.

We are very excited to be taking the exhibition down to Bradford to exhibit during the Saltaire Festival in September as well as a second Aberdeen exhibition at The Arts Centre & Theatre. We have been invited to take a mini exhibition and presentation to one of the local businesses in Dyce next week. I am also to take part in a training program as a Team B Aware Ambassador for Breast Cancer Care in September. The new scheme aims to target disadvantaged groups and raise awareness in being “Breast Aware” and to dispel the myths and fear surrounding breast cancer. Scotland has one of the highest mortality rates in Europe for breast cancer and this they say is down to late diagnosis. My role will to be to talk to groups and give the facts.

Life is altogether a slower more relaxed pace, less physically demanding and far less stressful now I am out of the big old house. I can honestly say I have not missed it at all. The move was a smooth transition from country to coast. Every day feels like a holiday looking from the windows to see the tide go out and the seabirds come in. Herons, Oyster catchers, curlews, gulls right outside the lounge window, wonderful walks directly from the front door and empty beaches within a short distance. Life on the estuary is just as it should be.
 
The Breathless Breastless exhibition can be viewed on line : http://www.breathlessbreastlessproject.org/